Many children with MPS II have breathing problems. Sometimes they snore or choke at night and can stop breathing (sleep apnea). If you've ever slept within 5km of our man, then you know he is a great snorer. So, to track his breathing and check if he needs help breathing at night from a machine like a CPAP, or, to have his tonsils/adenoids removed, his doctors arranged a sleep study.
Kristin and Jack headed to the big city and went to Sick Kids for an afternoon appointment at the sleep clinic. They then had the afternoon off so they took in the amazing Ripley's aquarium! It was amazing, but maybe our little dude isn't cut out for a career in marine biology, as Kristin explained:
Still, it looks like a pretty cool place! Here's jack in one of the tunnels where you are surrounded by fish:I loved it and would go back again so I could actually look at some fish. Jack was not so interested in them. He was more taken with the playground and the huge water table.
|Jack at the new aquarium in Toronto - look out for sharks!|
After a fun afternoon and dinner, it was time to head back to the hospital to get settled for a night of sleep (hopefully!?). Jack had some monitors attached to his head chest and head and then once he fell asleep he had more wires attached. What a trooper! Luckily, he slept like a champ! (Mommy, on a narrow bench in the same room, not so much!)
Here's our lil' man, cutting some zzz's during the sleep study:
|Digger/bulldozer pyjamas are essential to any good sleep study!|
And here is 'Dr. Owen' performing his own sleep analysis on Jackwhile playing in a super-fun blanket fort at Granny & Poppa's house. Wouldn't you like to crawl in there with them for a snooze? I'm sure it wouldn't be too loud or crazy!!
|Owen: 'Now where do I attach the probe?!!'|
This test, along with all of the other ones Jack has had since July, are a hassle and can be hard to explain to a kid. But, they provide great information that will help make Jack's journey with MPS II easier and better. Thanks as always to the great team at Sick Kids for the amazing work they do!