I have tried to sit down and write something about how our family is dealing with the challenges of Jack’s diagnosis and MPS II.
I struggle to put it into words. It has only been 7 months since we discovered that Jack has this disease. We have done all the medical baselines to find out what toll MPS II has taken on him in the short 4 years of his life. We are now on a new journey and trying to find our way.
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